Just an update for everyone. We still do not have a date set for surgery and should be receiving our letter for the next appointment with Wiggins sometime in the next few weeks. We are being as patient as possible while we wait for everything to develop. We have been giving a lot of encouragement and advice from so many great people and we are very thankful for that.
The girls had a great Christmas and Aliyah had a great time on her birthday. It was nice spending time with all of our family and friends. I cannot believe that Aliyah is now 4 years old. They are so full of life and happiness. We are truly blessed.
We recently have become more involved in a group called Mended Little Hearts of Montana. There are some great people in this organization who are going through the same things as we are. February 7th – 14th is CHD week. It is a time in which we can spread the word about Congenital Heart Defects and show support for those going through tough times. On Saturday February 14th we are going to help out a Family Bash in Missoula which is being put on by Mended Little Hearts. The proceeds help fund care packages for families who are in the hospital. We are very excited about that.
I have been asked by many of our family, friends, and colleagues what they can do to help. As of right now, you are doing everything you need. You are talking to us and letting us know that we have support. There will come a time when we will need help and we know we can count on you all. You can wear red during CHD week to show support. There is not an official day to wear red so I am going to declare Wednesday February 11th the day. I will post some CHD facts during this week like 1 in 100 children are born with some type of heart defect.
There have been a few articles in the paper about children being born with a heart defect. The most recent was about a baby in North Dakota who has his/her heart outside of their body. They will deliver at the Mayo clinic. The other one I read about was a family in Billings who have decided to not take medical intervention. The baby has HLHS which is a severe defect in which they baby is being born with an underdeveloped left ventricle. This can be treated by a minimum of 3 surgeries or can require a transplant. The baby is not being given a chance at life. This really depresses me knowing that the baby will gain their angel wings shortly after being born. So prayers go out to those families.
Lastly, if you need some inspiration or a reality check I recommend you watch Stewart Scotts acceptance speech from the ESPYS. Many of you know that he passed away from his battle with cancer a few weeks ago. If you do watch it, have a box of tissues close by. I am in awe of his outlook on life. Here is the link.
Joshua and Lindsay
The girls had a great Christmas and Aliyah had a great time on her birthday. It was nice spending time with all of our family and friends. I cannot believe that Aliyah is now 4 years old. They are so full of life and happiness. We are truly blessed.
We recently have become more involved in a group called Mended Little Hearts of Montana. There are some great people in this organization who are going through the same things as we are. February 7th – 14th is CHD week. It is a time in which we can spread the word about Congenital Heart Defects and show support for those going through tough times. On Saturday February 14th we are going to help out a Family Bash in Missoula which is being put on by Mended Little Hearts. The proceeds help fund care packages for families who are in the hospital. We are very excited about that.
I have been asked by many of our family, friends, and colleagues what they can do to help. As of right now, you are doing everything you need. You are talking to us and letting us know that we have support. There will come a time when we will need help and we know we can count on you all. You can wear red during CHD week to show support. There is not an official day to wear red so I am going to declare Wednesday February 11th the day. I will post some CHD facts during this week like 1 in 100 children are born with some type of heart defect.
There have been a few articles in the paper about children being born with a heart defect. The most recent was about a baby in North Dakota who has his/her heart outside of their body. They will deliver at the Mayo clinic. The other one I read about was a family in Billings who have decided to not take medical intervention. The baby has HLHS which is a severe defect in which they baby is being born with an underdeveloped left ventricle. This can be treated by a minimum of 3 surgeries or can require a transplant. The baby is not being given a chance at life. This really depresses me knowing that the baby will gain their angel wings shortly after being born. So prayers go out to those families.
Lastly, if you need some inspiration or a reality check I recommend you watch Stewart Scotts acceptance speech from the ESPYS. Many of you know that he passed away from his battle with cancer a few weeks ago. If you do watch it, have a box of tissues close by. I am in awe of his outlook on life. Here is the link.
Joshua and Lindsay